Editor's note: The following is the complete article from the October/November 2026 issue's condensed version of "Non-Beneficial Life Prolonging Interventions" Thanks and credit to JAMANetwork.com
Decision-Making Approaches Used to Limit Potentially Nonbeneficial Life-Prolonging Intevrentions
Respondents described a range of decision-making approaches physicians use to influence patients and surrogates toward limiting potentially nonbeneficial life-prolonging interventions. Based on these descriptions, we developed a conceptual framework of 6 approaches that categorized each approach as a recommended or alternate approach (Figure). While no individual respondent articulated all 6 approaches, each was represented across sites by physician and nonphysician clinicians.
The 6 decision-making approaches are identified from left to right across the center of the Figure. In the boxes above, each decision-making approach is categorized as an approach that is recommended in professional society policy statements (ie, shared decision-making, institutional process addressing disagreement with patients/surrogates), or as an alternate approach. Approach 3 can be either a recommended or an alternate approach, depending on how it is enacted. For the discussion-based approaches (approaches 1-5), the alterations that physicians make to tailor the degree of influence toward limiting interventions (eg, altering what information is presented, altering how choice is offered) are described below in arrow-shaped boxes.
Respondents described approaches 1 through 5 as discussion-based approaches, in which physicians tailor the degree of influence they provide toward limiting interventions by altering the way they present information or offer choice (Figure). In contrast, respondents described approach 6 as a shift from attempting to limit interventions through discussion with the patient or surrogate to involving the institution in a policy-supported manner (Figure).
Each approach is described below, with quotations shown in Table 2.
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Providing an informed choice regarding interventions: The physician presents multiple options to the patient or surrogate, including at least 1 that limits life-prolonging interventions (Q1). The physician contextualizes these options to support an informed choice (eg, by describing expected quality of life, probability of survival to hospital discharge, etc) (Q2). Respondents felt this framing could influence patients and surrogates to limit interventions (Q3). Some respondents contrasted this approach with offering interventions without any guidance or intention of limiting interventions (Q4).
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Making a recommendation to limit interventions: The physician presents multiple options to the patient or surrogate and conveys a professional recommendation to limit interventions (Q5). Respondents provided examples of explicit recommendations (Q6) and discussed other ways recommendations could be conveyed (Q7). Respondents noted that the physician allowed the patient or surrogate to choose options differing from the recommendation (Q8).
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Stating a plan to limit interventions: The physician states a plan to limit interventions in the presence of known alternatives (Q9) and proceeds unless the patient or surrogate dissents (Q10). Physicians differed in the degree to which they explicitly offered a choice to defer to physician judgment or object to the plan (Q9-Q11). Respondents felt this approach guided the patient or surrogate toward limiting interventions by easing their decision-making burden (Q10-Q12).
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Explicitly not offering interventions: The physician states a final decision to limit interventions without providing a choice to the patient or surrogate (Q13). The decision not to offer an intervention is not responsive to objections from the patient or surrogate (Q14). Respondents explained that this approach guided the patient or surrogate by removing options from consideration (Q15).
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Silently withholding interventions: The physician omits mention of a life-prolonging intervention, thereby offering neither information nor choice (Q16). Some physicians described how this could be accomplished by not consulting physicians who might offer the intervention (Q17). Respondents saw this approach as a way to avoid introducing new interventions as options (Q18).
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Initiating an institutional process to limit interventions: The physician activates an institutional policy to limit interventions over the objections of the patient or surrogate (Q22). Most physicians described a process that involved other hospital personnel in positions of authority (eg, ethics consultants, risk management, the chief medical officer) (Q23). It was consistently described as an option of last resort that was rarely used (Q24).
In approaches 1 through 3 (providing an informed choice regarding interventions, making a recommendation to limit interventions, stating a plan to limit interventions), the physician guides the patient or surrogate toward limiting interventions but proceeds only if a shared decision is reached, conforming to recommendations in professional society policy statements.
Respondents identified challenges to limiting interventions using shared decision-making (Table 3). Respondents described how patients and surrogates experienced extreme difficulties in making potentially life-ending decisions (Q22), resulting in time-consuming and distressing decision-making experiences for all parties (Q23). During prolonged decision-making, respondents expressed alarm about unnecessary patient suffering or harm (Q24) and moral distress for the clinical team (Q25). Some respondents acknowledged that such challenges influenced them to avoid shared decision-making in certain situations (Q26).
Approach 6 (initiating an institutional process to limit interventions) also conforms to recommendations in professional society policy statements. Respondents identified challenges with using this approach (Table 3). Respondents felt that, while this approach was sometimes necessary, it was likely to worsen clinicians’ relationship with the patient or surrogate, causing resentment or suffering (Q27). Respondents feared downstream negative consequences such as legal action or media scrutiny (Q28). Respondents felt that the success of this approach depended on a unified team and administrative support, which was not always present (Q29). Some respondents acknowledged that such challenges deterred them from using institutional processes to limit interventions (Q30).
In approaches 4 and 5 (explicitly not offering interventions, not mentioning interventions), the physician limits interventions without a shared decision or an institutional process. In most descriptions of approach 3 (stating a plan to limit interventions), the patient or surrogate is not offered an opportunity to object to the stated plan, and thus the physician limits interventions without a shared decision. These approaches are not recommended in professional society policy statements.
While respondents recognized that these alternate approaches were sometimes used (Q30) (Table 4), they described substantial practice variation in the use of alternate approaches among individuals (Q30 and Q31) and across institutions (Q32). Respondents felt that physicians differed in their ethical beliefs about alternate approaches (Q33), with some questioning (Q34) and others endorsing (Q35) the ethical permissibility of alternate approaches. Respondents used various rationales to justify alternate approaches, such as lack of impact on patient outcome, potential for harm, medical ineffectiveness, or medical futility (Q36). Respondents also described specific uncertainties regarding the permissibility of alternate approaches, depending on the nature of the intervention (Q36) or the physician’s specialty or role (Q37). These ethical uncertainties were closely intertwined with practical uncertainties, including how such approaches might be received by patients and surrogates or consulting teams and the potential for negative downstream consequences (Q36 and Q37).